National Organizations

NDSS – National Down Syndrome Society http://www.ndss.org/

National advocacy and research organization.   Site provides information general information about Down syndrome, parent and support group resources, latest in research and medical, and positive messaging, and information on Buddy Walks around the world.

NDSC – National Down Syndrome Congress http://www.ndsccenter.org/

Provides information, resources, support, and education, as well as teaching advocacy and networking opportunities.

Down Syndrome Affiliates In Action http://www.dsaia.org/

National association that provides resources to local Down syndrome groups.   Provides conferences and educational information

National Down Syndrome Adoption Network www.ndsan.org

Our mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family. The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families. The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome.  

For New Parents

Dreams Video https://youtu.be/-_-P4t2jR1g

Adults and children with Down Syndrome talk about their lives.

Grace: A Story of a Family and Down Syndrome https://youtu.be/VNvayF6ASOo

A short documentary

Video: Down Syndrome in the 21st Century https://youtu.be/I13KxRYqoo0

Highlighting the abilities of people with Down Syndrome  

Other Local Area Support Groups

FEDS – Families Exploring Down Syndrome – http://www.familiesexploringdownsyndrome.org/

Providing family support and resources to families in the Macomb County area and beyond

ACA – Washtenaw Association for Community Advocacy – http://www.washtenawaca.org/

Supports individuals with developmental disabilities and their families, doing so throughout a lifetime by helping them to achieve and maintain inclusion in the community.

Down Syndrome Guild of Southeast Michigan – http://www.dsgsemi.org

Providing resources and support for communities in SE Michigan, including Wayne, Oakland, Livingston and beyond

Michigan Alliance for Families http://www.michiganallianceforfamilies.org/

Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Educational Resources

Early Intervention Fact Sheet – http://www.ndss.org/Resources/Therapies-Development/Early-Intervention/

From the National Down Syndrome Society

Woodbine House http://www.woodbinehouse.com/

Woodbine House is a publisher specializing in books about children with special needs, including Down syndrome

Kidzone – Tracing Pages http://www.kidzone.ws/tracers/winter/index.asp

Make your own alphabet, number or name tracing pages to help develop fine motor skills and writing ability.

iPhone/iPad Apps

http://www.oneplaceforspecialneeds.com/main/library_special_needs_apps.html

Recommendations for iPhone/iPad apps for children with special needs.

Legal Resources

Wright’s Law http://www.wrightslaw.com/

Resources for parents, educators, advocates, and attorneys that provides information about special education law, education law, and advocacy for children with disabilities.

Wendy Alton – Attorney, Special Needs Trusts http://www.psedlaw.com

Local Washtenaw County Attorney specializing in special needs estate trusts.