National Organizations

NDSS – National Down Syndrome Society

National advocacy and research organization.   Site provides information general information about Down syndrome, parent and support group resources, latest in research and medical, and positive messaging, and information on Buddy Walks around the world.

NDSC – National Down Syndrome Congress

Provides information, resources, support, and education, as well as teaching advocacy and networking opportunities.

Down Syndrome Affiliates In Action

National association that provides resources to local Down syndrome groups.   Provides conferences and educational information

National Down Syndrome Adoption Network

Our mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family. The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families. The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome.  

For New Parents

Dreams Video

Adults and children with Down Syndrome talk about their lives.

Grace: A Story of a Family and Down Syndrome

A short documentary

Video: Down Syndrome in the 21st Century

Highlighting the abilities of people with Down Syndrome  

Other Local Area Support Groups

FEDS – Families Exploring Down Syndrome –

Providing family support and resources to families in the Macomb County area and beyond

ACA – Washtenaw Association for Community Advocacy –

Supports individuals with developmental disabilities and their families, doing so throughout a lifetime by helping them to achieve and maintain inclusion in the community.

Down Syndrome Guild of Southeast Michigan –

Providing resources and support for communities in SE Michigan, including Wayne, Oakland, Livingston and beyond

Michigan Alliance for Families

Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Educational Resources

Early Intervention Fact Sheet –

From the National Down Syndrome Society

Woodbine House

Woodbine House is a publisher specializing in books about children with special needs, including Down syndrome

Kidzone – Tracing Pages

Make your own alphabet, number or name tracing pages to help develop fine motor skills and writing ability.

iPhone/iPad Apps

Recommendations for iPhone/iPad apps for children with special needs.

Legal Resources

Wright’s Law

Resources for parents, educators, advocates, and attorneys that provides information about special education law, education law, and advocacy for children with disabilities.

Wendy Alton – Attorney, Special Needs Trusts

Local Washtenaw County Attorney specializing in special needs estate trusts.